Sunday, August 24, 2008

Paula Abdul's Pain Journey and Others Speak Out

I was fortunate enough to run into a recent online ABC interview with Paula Abdul, concerning her battle with RSD and the resulting pain that she has endured for 25 years. Also , her use of Opioid medications so she could get out of bed and have as productive a life as her pain allows her to.

We've all heard the jokes about her being "on pills" or "drunk". When I do see the times she does seem to be talking a bit slurry, I wonder if it is from a new med, and she is getting used to it, or a change in the dosage of what she takes. There are many reasons in a pain patients life to exhibit those symptoms or side effects.

Knowing that she suffers from a Chronic Disease, causing Chronic Pain, I feel very sad when I hear others talk about her in a negative light. My heart goes out to her, as does my heart and empathy go to every person that suffers in any way with pain and ALL we need to do to address it.

If a patient decides to try the use of opioids in their pain management regime, there will be side effects that show at times. CP (Chronic Pain), patients take these meds, as stated in the article, sometimes at grams, not milligrams. And do they get 'high' off of opioids? No! Many say that they wish they could at least feel something. Everyone likes to alter their reality with something, if we are very honest with ourselves. If it is not liquor, it is smoking pot. If it's not being high on all your new clothes that you can't really afford, or stole; it is using lies to get that rush, the rush of getting caught. I knew a man who liked to drink, yet his lies were much higher on the get high scale than the wine....the adrenaline rush he must have had, heart beating quickly as he tries to remember what he told one person and what he told me.

Those who have every day pain, and take medications for it, go through so much just to get the RX, get it filled at a Pharmacy that: 1. Has it in stock, 2. Doesn't treat you like a drug abuser, but with respect, as everyone should be treated that they serve. Then picking them up later, if waiting is out of the question, because you are in pain. Sometimes the life of a pain pt. (patient), is a series of catch-22's. You waited till the last minute to get your meds because you have been in such high pain and there is no one close to help you out. If the pharmacy doesn't have it in stock, (which is why it is a great idea to call first and simply find out!), you must either know your backups, or guess at what pharmacy you will go to.

Paula Abdul had not gone public with her pain issue for many years. I remember her as a Lakers cheerleader, then her introduction to the music world. To think that since the cheerleading days she has been dealing with her pain. Quietly. In fear. Like so many with Chronic Pain. Fear of what others think when it comes to taking narcotics. Fear of 'their' approval or disapproval over 'their' beliefs in taking opioids. Who are 'they'? If they are your family or friends, they are not educated in chronic pain. Educate them! Once they have been, if they keep their treacherously narrow view as before, you do not want them in your life. All they do is pull you down. I want the people that offer to help me. Who know my story very deeply

Paula wanted people around her that understood her pain and how she chose (with her doctor), to treat it. And meds are just one part of a pain management ongoing program. She, like others that just happen to not be a celebrity, feel the vibes from the haters. The ones that never fail to say that,"my doctor can cure you", "my Uncle got this or that treatment", and how what worked for these people, will work for you. (When the person they are referring to have no diagnosis even close to ours!) We, on the other hand, the pain pnut gallery, have researched our diagnoses for years. We have seen many doctors. Tried many if not all treatments, procedures, surgeries, and medications available to us for our specific issue. We heard the doctor say after seeing our backs opened up, that there is no surgery available. Period. Were these people that want to judge us, there by our side, helping us with trips to the doctor when we are in pain, were they there when the doctor said he couldn't do anything anymore surgically and we are relegated to a life of pain management. How alone are we in this life of hidden illness?

Paula Abdul felt alone. She had to put up with the rumors and attention to something that is personal, it is her health. Her publicists are racing around trying to decide what to say to the press when her speech sounded slurred or the rumors were flying. Then she did what we all must do, if not already done. She told the truth, her truth, in an interview, then another, and another. Her truth, in essence, has set her free. Tell the world, your world, about your story. About your cheerleader story. How you originally hurt yourself, if you can put a finger on that. Or what you feel now, and what the causes are. Let people know who you are.

We are not our illnesses; we have illnesses. And when we have something, it is ours to do with what we want. Work on it, research it, take care of it, and ultimately, you. Paula Abdul has taken steps for years to try and let her just live every day without the pain that kept her from doing what she wanted to in her profession. KUDOS Paula!

The fireman interviewed in the article is eloquently spoken about his world now in chronic pain. He has quite a few great things to say. To read the article, just click on the title of this post.

I wish you a low or no pain day.





"The Only Constant in Life....is Change."

6 comments:

  1. I learned of Paula's neck injury this spring. She revealed it on her show. I think it was "Hey Paula". I know it was on Bravo. I felt so sorry for her. Anyone seeing that show and witnessing her pain could not help but have empathy for her.

    On one show, Paula had been up so long and in pain that she cried.

    For some reason we chronic pain people go through weeks when we cannot sleep for days. She was having one of those weeks. It was the week she was a guest on the David Lettermen Show. I saw the show and honestly, she was a mess. She should have called off that show. However, she was determined to do it.

    It was much later when I found out she was suffering from chronic pain. Then I realized she was probably taking her meds.

    She certainly had to feel a sense of relief by telling the truth. What people were saying about her was terrible. Yes, I had heard the alcohol and cocaine abuse stories. For some reason some people like to think the worse.

    Wonderful-wonderful post

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  2. Thanks for posting this. I knew that Paula has chronic pain and have really felt for her. I appreciate your blog and the positivity! I also have chronic illness and my blog tries to help encourages others as well. I'm glad I found your blog. God bless you! :-)

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  3. Dear Mckay,

    What timing on your comment touching on those of us with Chronic Pain that have those weeks when we can not sleep for days. And you mean DAYS!!! I am glad that you had a goiod background on Paula, and had seen some of what I was referring to.

    My kindred spirit, I have not slept for DAYS this last month!! As in stay up all night when normal people do, (as in those with day schedules), and watch the sun come up, triggering my circadian rhythm to say, "Time to get up!"....and my day is on. To fall asleep in the morning when I really get hit by the lack of sleep is not possible. There are things to do and people to call, bills to write and juggle, answer emails if I can even get through the entire days worth. (I am behind in days now, not a day.)

    In fact that is a post to come hun. Thank you as usual for your great comments and insight.

    Your KS......

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  4. Dear Kim,

    Thank you for your positive comment! Oh how I love those that stay positive through what we live with! And to know how many that have day after day without pain, can be so negative and selfish.

    Some of the most open, caring, positive and unselfish people that I know are those with CP or other hidden illnesses.

    We just need to wear a cast to educate these people and let them SEE that something is wrong with us, for they do tend to forget very quickly what we face each day, along with ALL the 'regular' stuff that we all deal with.

    Kim, I looked for your blog on your profile, and could not find a link. Can you leave for me it on here?
    Thank you for your positivity also.

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  6. Great post. Sorry I haven't been by in so long.

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