Sunday, June 20, 2010

Examining Chronic Pain Series: #1 Daily Patients

                                     
                                           WE ARE PATIENTS-- DAILY

 
 Deep, in the bones of my Thoracic spine, pain is hitting me hard today.  I know that many other pain sufferers will understand this type of pain.  For caretakers, family, and friends of a person in pain most of the time; this post may give you a glimpse into a world of our pain.   It is not simply to hope that we can explain the actual pain.  Being a patient on a daily basis brings many other issues to the front in our lives.  

Patient***#1) One who is sick with, or being treated for, an illness or injury. 2.) One who is receiving medical care.***

So, we who have daily pain, are patients ALL the time.  If you do not suffer from Chronic Pain, think of the last time that you were a patient.  Saw the doctor for that earache and were on antibiotics that made you ill, or the rash on your arm that will not go away, to a hospitalization for a medical issue that was serious- or possibly life-threatening.  You probably received a lot of attention from your support system, and were 'cheered on', brought food to, had visitors, and got calls from those that care about you; flowers and get well cards.

I've been in that type of position medically; during and after back surgeries.  I saw the people that really cared for me in those situations.  When there is something acute happening to someone we love, we are usually feeling a bit of worry, concern, care, and these manifest in acts of kindness.  This is normal human behavior.

The patient then goes through a phase of rehabilitation, and eventually, (hopefully) returns to a good state of health, and move on with their lives.  (I am obviously looking at the best of outcomes here for example only.) 

The calls come less often, the cards stop, you have recovered and no one needs to go out of their way for you now.  The illness, surgery or other medical issue is gone, and often forgotten by some.  An ACUTE medical problem has been addressed, and you are no longer a patient.   

What happens to the CHRONIC patient?  I write in pure truths here and I believe that most people would rather turn their head than become involved in that patients life.  (Of course save for our partners that are involved with us on a deeper level.)  It is not a terminal diagnosis.  It is a diagnosis that simply make us patients every day of our lives.  Another deep belief of mine:  Most people that shy away from Chronic Pain/Illness patients, have deeply-rooted fears that they too, may someday have the same problem.  That scares them.  It is easier to pretend that it is not happening, than it is to make a concerted effort to connect with the patient.

There is a lot to cover on this subject.  I'm going to break this up in upcoming posts.

Also, I have been looking into Medical Coding and Billing as a possible option for me to work from my home.  I found a great .org site with tons of information on this medical profession.  Having a thorough knowledge of medical terminology would help, and I found out that there is the ability to focus on a certain specialty!  Hmm wonder what I would focus on.....they told me that “Students learn about acute and chronic patients during medical coding certification.”  Well well....I may be discovering the perfect job for my given situation.

The Only Constant In Life....Is Change!   


Gentle Hugs ------<3


Next post--Top Ways To Easily Help The Chronic Pain Patients In Your Life

     

  






Gentle Hugs...

8 comments:

  1. Hi Shauna! I find that it's really difficult for people to understand chronic pain as opposed to acute pain. I have found the same thing about being in hospital, a lot of friends made time to visit then, but don't do that in everyday life, even though I am just as incapacitated at home as I was in the hospital. People just seem to stop thinking about your pain as actual pain and just kinda fob it off as "this person has a chronic illness" without really understanding the daily pain that that involves. I also find that everyone expects consistency, if someone is paralysed, they can learn to function around their disability, however with chronic pain conditions it's nearly impossible to function around because you just never know what it's going to do!

    Very huge topic, looking forward to your future posts!

    Caf xx

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  2. Shauna

    I took the opportunity to like your post to our blog. I am a specialist in physical medicine and rehabilitation from Canada. My practice is 80% chronic pain. I am in complete agreement with you ... as a healthcare professional, I do not understand the suffering and the changes in family/provider dynamics around the daily patient. But I do understand how I feel when I am not able to help or ease your suffering.

    As a medical doctor, I am trained to fix and cure but we are not trained in what to do when there is no fix or cure. The majority of us put up barriers and present in an unsympathetic way.

    We would be happy to hear from yourself and other chronic pain suffers in our blog. We tend to learn more from patients then text books or literature.

    BLOG

    http://healthpointeproductions.blogspot.com/

    Thank you

    Jamie

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  3. thank you for sharing this informative post...
    This is really a health related blog post..
    Thank you for the post..

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  4. Hi Caf!!

    You wrote it perfectly honey!! That is exactly what I am talking about in this post.

    I know it would be tough to have a close friend that is disabled with chronic pain as you stated in your comment--that we never know what 'it' will do. We can't be counted on. I have not been able to make it to my very important pain doctor appt. because I was unable to drive or get ready, I was in too high of pain levels.

    We somehow must find a half-way point...I'll post ASAP...unfortunately my BF needed me and I was recently witness to her hearing a chronic diagnosis explaining the pain she'd been feeling. Having your pain validated by a test certainly helps to feel at least as if there is hope...that is can be 'fixed'.

    Hope does keep us going...ALL of us!!

    Gentle Hugs my friend----<3

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  5. Dear Dr. Jamie,

    I was just 'over at your place'! Thank you for including my post and your commentary. Glad that we crossed paths! This could be an excellent way to allow patients to hear directly from a pain specialist....on.. how you feel with the patients that have no direct or discovered etiology for their pain, what your day is like, etc. Patients would love to hear about your life, as you 'have to', (but hopefully also 'like to') hear about your patients'.

    I will be commenting over at your blog and adding you to my blogroll soon. A very close friend has needed me when she was to hear some of her own chronic findings in X-rays, in the spine, and next the MRI; and to know that she is just starting.

    I was glad to be there to help her understand her new diagnosis, but not glad to hear her physcian say that she would be an 'addict' soon if she had to go down the 'pain management road', and....***oh-oh...being the nurse and educated patient I am, I can't keep quiet when I hear that word tossed around in the subject of pain control. Had my own discussion with the Dr. and wasn't very impresssed with the 'already negative and judgemental attitude' she conveyed during my friends visit.

    Next stop Ortho for my friend, and I am now facing some other medical issues---will have more info after the required tests are finished. Never seems to end...

    I do agree that if the pain team learns from other patients in pain, it surely beats any textbook info anytime. :)

    Looking forward to our newfound online friendship!

    (Here you will always get.....)

    Gentle Hugs----<3

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  6. Hi Shauna

    I am one of the few converted medical doctors who manage pain patients. My objective besides trying to manage chronic pain patients is to educate other healthcare professionals in this much needed area of compassion and empathy. I must admit it is a great challenge given the the majority of medical practitioners do not believe that fibromyalgia exists. Let alone the huge misconceptions of addiction and dependence of opioids.

    The greater challenge is that majority of physicians who have any empathy or compassion in relation to chronic pain management have waitlists that are 8 to 24 months long.

    In addition, the team required to fully manage such a population is very expensive to afford without additional government funding. I am forced to do a considerable amount of 3rd party work (ie medical legal and insurance company work) in order to pay the bills at the end of the day.

    My next posts in our blog will be focused on issues of doctor misconceptions around opioids and the business of chronic pain management.

    Thanks for inviting me into your online discussions.

    Jamie

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  7. I am new to your blog. . .But I think we're on the same page. I am suffering chronic back pain!sometimes, disturbing - yet hopeful conclusions for the chronic pain sufferer. I keep on smiling to endure the pain. . .

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  8. Daphne,

    It is always great to meet a person that I know immediately 'gets me', and in turn, I get you. The common thread is pain; the common thread is also the hope we always carry with us; it will get better, I can make it through this day; I will drive there because I have to.

    The strength of our will to keep plodding through life with such a hindrance as daily pain is proof again that we have an unusual ability to focus on the task at hand!

    Glad you enjoy the blog. :)
    Gentle Hugs are always given here------<3

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