Getting my diagnosis of Thyroid Cancer took unneeded time, and valuable years of my life. Looking back, there was evidence from a CT scan done in 2011 that certainly should have been utilized. I was not diagnosed with Thyroid Cancer until 2014.
That scan is referenced here, in a post titled: A Jawdropping CT Scan. This was a thoracic spine study which incidentally showed a mass on my thyroid-- which was ignored by the ordering physician; ignored like many other issues he should have acted on. I didn't know about the mass until I got a copy of the scan much later. That doctor made some big mistakes in my care. That scan should have had him immediately send me to two specialists: an Endocrinologist and a Pain Management doctor, as he was prescribing my medication, which was ineffective. I was pleading with him to refer me to a pain doctor, as he knew I would not have anymore spine surgeries, and I was also very interested in the intrathecal pain pump. That all starts with seeing a pain management physician. His office was not known for timely referrals, or in my case, a referral at all.
Those 3-4 years between a mass first seen on my thyroid, and getting a cancer diagnosis, were very tough times. I had severe insomnia, unable to sleep for three months, after staring at the ceiling all night, sleeping on the couch because my boyfriend snored something horrible (and was abusive) I sometimes caught a quick nap as it neared early morning, then being awoken by his alarm, it was impossible to go back to sleep. I was absolutely dragging through each day.
I had a rapid heart rate which presented itself on my shirt-- moving with each beat, it was so strong. That heart rate contributed to feeling extremely anxious during those 3 months of no sleep. That kind of insomnia is akin to what is done during prisoner torture--keeping a person from sleeping for weeks, months at a time. It makes you feel like you are going crazy; it causes psychosis.
Brain fog followed right along. Mix all of those symptoms up and I was a candidate for the psychiatric department like so many misdiagnosed thyroid patients. Untreated thyroid disorders can mimic mental health symptoms.
I showed as 'euthyroid' in thyroid blood work, which is normal levels. So anytime I was tested for thyroid disease, it was all normal, yet I had cancer growing in 2 of the 4 masses on my thyroid. I came to learn that doctors can not rely on blood tests alone for finding disease in the thyroid. I was a perfect example of that.
I fought for my own health. I took the initiative to press on about how I felt, my symptoms, the need to find out what was wrong with me. Then my angel showed up. God made sure I wasn't alone in my fight, in finding out what was happening to me.
Next: Asking for help....An Angel showed up..
Gentle Hugs....and a tolerable pain day
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