Saturday, May 11, 2024

Searching For An Answer...is it Thyroid Cancer?



Getting my diagnosis of Thyroid Cancer took unneeded time, and valuable years of my life.  Looking back, there was evidence from a CT scan done in 2011 that certainly should have been utilized.  I was not diagnosed with Thyroid Cancer until 2014.   

That scan is referenced here, in a post titled: A Jawdropping CT Scan.   This was a thoracic spine study which incidentally showed a mass on my thyroid-- which was ignored by the ordering physician; ignored like many other issues he should have acted on.  I didn't know about the mass until I got a copy of the scan much later.  That doctor made some big mistakes in my care.  That scan should have had him immediately send me to two specialists: an Endocrinologist and a Pain Management doctor, as he was prescribing my medication, which was ineffective.  I was pleading with him to refer me to a pain doctor, as he knew I would not have anymore spine surgeries, and I was also very interested in the intrathecal pain pump.  That all starts with seeing a pain management physician.  His office was not known for timely referrals, or in my case, a referral at all.  

Those 3-4 years between a mass first seen on my thyroid, and getting a cancer diagnosis, were very tough times.  I had severe insomnia, unable to sleep for three months, after staring at the ceiling all night, sleeping on the couch because my boyfriend snored something horrible (and was abusive) I sometimes caught a quick nap as it neared early morning, then being awoken by his alarm, it was impossible to go back to sleep.  I was absolutely dragging through each day.  

I had a rapid heart rate which presented itself on my shirt-- moving with each beat, it was so strong.  That heart rate contributed to feeling extremely anxious during those 3 months of no sleep.  That kind of insomnia is akin to what is done during prisoner torture--keeping a person from sleeping for weeks, months at a time.  It makes you feel like you are going crazy; it causes psychosis.  

Brain fog followed right along.  Mix all of those symptoms up and I was a candidate for the psychiatric department like so many misdiagnosed thyroid patients.  Untreated thyroid disorders can mimic mental health symptoms.

I showed as 'euthyroid' in thyroid blood work, which is normal levels.  So anytime I was tested for thyroid disease, it was all normal, yet I had cancer growing in 2 of the 4 masses on my thyroid.  I came to learn that doctors can not rely on blood tests alone for finding disease in the thyroid.  I was a perfect example of that.  

I fought for my own health.  I took the initiative to press on about how I felt, my symptoms, the need to find out what was wrong with me.  Then my angel showed up.  God made sure I  wasn't alone in my fight, in finding out what was happening to me.


Next: Asking for help....An Angel showed up..


   

Gentle Hugs....and a tolerable pain day


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