In the past few months, I have been experiencing a series of events that have led up to a change in my life of pain.
Virtually unable to explain how this has made me feel, I can say that I am happier, more positive, and much more in control of my life than I have in a long, long time.
Taking back control had to be the key in this equation. I was locked in, a puppet, a reactor, and I am tired of that. Waiting for others to pull my strings, as I sit limp, wanting things to happen, but not in control of any part of the situation.
I assessed myself, and saw what it was that had to be done to continue in a healthy, positive, safe manner in my pain management, and my life in general. The emotional and psychological effects, that were a result from the endless waiting, the not knowing, the uncertainty, the incompetence, and always being at someone else's whim; were grinding me down.
Over the past months, I have been silently and quietly decreasing my dosage of pain medications. With help from my beloved ex-pain doctor, and my wonderful primary care physician, my intake of medication is drastically lower. This is a survival strategy, not a pain management strategy. Although it is a well known practice for pain patients to be detoxed or weaned off when pain keeps increasing despite high doses of medications. Then pain is assessed in a medication-free (or greatly reduced) body.
When I wrote the post about being prepared to get ON opiates, I received one particular email from a pain patient that talked about making the decision to decrease their medications. I found that interesting, probably because I was smack in the middle of all these other factors and events and people that were all a part of my decision. It was just another 'factor' that showed up. And became a new friend!
This is an extremely personal decision, just like starting on medications like so many pain patient choose to do when there is nothing left to do to help the constant pain. This is also something that (similar to starting meds) must be followed closely by a doctor.
When the winds blew in, I was ready for change. This seems to be one of the best and most positive changes I have made recently, for I feel great, and most important, my pain is under control at this time. The way the Universe came together over the past months has intrigued me, swept me up, put me back in the Captain's chair, and even touched my cheek softly as it blew past and out the window.
I am the Captain again.
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*The subject of decreasing medications safely and keeping track of it all, calls for another post, which I am looking forward to sharing.
Gentle Hugs....
Sunday, August 5, 2012
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So great to hear! I hope you continue to feel good and in control.
ReplyDeleteHow great is this for you!!!!
ReplyDeleteI recently decreased all my meds too... Maybe something in the water!!! It has made me less cranky, less sick to my stomach and more in control of my emotions, too.
Hi Shauna,
ReplyDeleteI really hope that this works out for you. You are so right, dealing with life time pain does need a strategy whether this is to be one of long term coping and survival or for an eventual, dignified exit (not that the two are mutually exclusive) is a matter of choice. Where we feel, as you do, that we still have much to offer then choosing the means by which to manage the situation has got to be the best although definitely not the easiest. Without the proper input that choice can all too often become one between a comfortable semi-oblivion or painful but tolerable functionality. I guess we all have our own different balance points where we can precariously manage to have lives that we feel are fulfilling while at the same time being able to have the fortitude to deal with our various illnesses. I will be so happy for you to be able to move that point so as to have less need to depend on medication and have nothing but admiration for your being able to take these first steps towards it.
Good luck and God bless,
Roger
I am so pleased to read of your experiences taking control of your medication and by extension, your whole life! It's such an empowering thing to do, to realise that we can decide what we take and how much something is helping or hindering our quality of life. I wish you all the best with the transitions (i know that they can be tricky) and hope that you emerge feeling much stronger and steadier ;) xoxo
ReplyDeleteGood job captain! I wish you continued improvement on your new strategy.
ReplyDeleteIt's so good that you feel better- getting control of your pain is such a great feeling.
ReplyDeleteRespect!
ReplyDeleteLook forward to your experiences and any hints or tips you can offer.
JK
Shauna, Linda, Caf, my steadfast friends...you have hung in there and continued to support me in all ways, with your kind words, prayers, comments, and personal emails/interactions. I am blessed to have crossed paths with you.
ReplyDeleteRogr, Thank you for your words of encouragement. (If I didn't know better, well you just sound so much like a blogger friend from '08, one of the first pain patients I met online) Thank you for your caring attitude. Means so much!
Terry, awww you are the best!
Got your email....;) Thank you so much. (No way to write you back btw) See you at your place soon my dear friend.
Dr. John, Thank you for checking back here with me and taking the time to let me know that you care about my situation.
CP, Just visited your place, and left a comment for you. Hang in there my fellow pain sufferer...for with the fantastic support available here from other people that truly understand you, can be such a source of inspiration!
Thank you also to all the personal emails I received from people telling me their stories of pain, personal anguish, or individual successes. This is invaluable to me, and I thank you all.
Gentle Hugs-----<3